Mission: Provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.
New patient registries will improve health care and outcomes for children and families living with rare diseases
Ontario NDP MPP Bhutila Karpoche is pushing for action on rare diseases with her private member's bill. This petition calls for a provincial strategy to support rare disease patients' needs. Sign the petition and read more.
The Bayshore Foundation for Empowered Living, the charitable arm of Bayshore HealthCare, has donated $5,000 to the Canadian Organization for Rare Disorders (CORD). The donation was made in partnership with Bayshore Specialty Rx to support individuals in Canada who are affected by rare diseases.
Slides and Video Recording: Rare Disease Day 2024 Summit in Ottawa (February 28 - 29, 2024) Thank you to everyone who contributed to the success of the Rare Disease 2024 Summit.
Join us Feb. 29th for our march on Parliament Hill!
Action Needed: Join CORD in our #FightForOurLives Campaign. CORD is launching this campaign to get governments across Canada to move forward on the promised funding. French and English
RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS
CORD submission to PMPRB Scoping Paper consultation on new Guidelines This week CORD submitted its feedback to the PMPRB’s new Scoping Paper on upcoming guidelines.
CORD 2023 Fall Conference Slides: Community – Created: Canada's Rare Disease Network: Top-Down, Bottom-Up and Coastto-Coast November 29-30, 2023 Delta Calgary Downtown 209 4th Ave SE, Calgary, Alberta Canada's Rare Disease Network: Top-Down, Bottom-Up and Coastto-Coast November 29-30, 2023 Delta Calgary Downtown 209 4th Ave SE, Calgary, Alberta
Join us and become part of an active Canadian rare disorder community. The only national organization representing all rare disorder patient groups in Canada.
For individuals, patients or family members.
For patient-based organizations, support groups or other charitable groups.
For industry (pharmaceutical/biotech) and corporate associations.